B IN THE KNOW
Below are some helpful links to resources and information for Caregivers, Sickle Cell Warriors, Educators, our Community and Medical Providers.
Caregivers
FOR CAREGIVERS OF WARRIORS: For those who care for or love someone with SCD.
- https://www.cdc.gov/ncbddd/sicklecell/features/sickle-cell-caregivers.html Resources from the Centers for Disease Control and Prevention (CDC)
- https://sickcells.org/resources/caregiver-resources/Sick Cells Caregiver Resources
- https://ashpublications.org/blood/article/140/Supplement%201/13148/489062/Understanding-Caregiver-Burden-with-Accessing ASH: Understanding Caregiver Burden
- For Parents & Advocates: http://www.scdcoalition.org/resources.html#patients
Warriors
FOR SICKLE CELL WARRIORS For those who have been diagnosed with sickle cell disease.
- https://www.sicklecellconnect.com/ Sickle Cell Connect
- https://www.cdc.gov/ncbddd/sicklecell/index.html CDC Sickle Cell Disease
- https://www.stjude.org/disease/sickle-cell-disease.html St. Jude Hospital: Sickle Cell Disease
- Sickle Cell Speaks: https://www.sicklecellspeaks.com/understanding-sickle-cell/what-is-sickle-cell/?utm_source=google&utm_medium=cpc&utm_campaign=%7Bcampaign%7D;11624761654;&utm_content=601669275498;113689909672&utm_term=sickle%20cell%20disease&gclid=CjwKCAjwoPOwBhAeEiwAJuXRh1hCBW4CSoiYmiuRsOy3cCD8AfrTjAfLyaSckWSCHg33Pvi58PKHbhoCouwQAvD_BwE&gclsrc=aw.ds
Educators
FOR EDUCATORS AND CHILD CARE PROVIDERS For those who have students with sickle cell disease.
- https://www.hematology.org/education/educators Guidance from the American Society of Hematology.
- https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheet_Supporting_Students_with_SCD.pdf CDC Tips for Supporting Students with Sickle Cell Disease
- https://www.stjude.org/content/dam/en_US/shared/www/patient-support/hematology-literature/educators-guide-to-scd.pdf St. Jude Hospital’s Guide for Educators of Sickle Cell Disease Students
- For Parents & Advocates: http://www.scdcoalition.org/resources.html#patients
Community
FOR THE COMMUNITY & THOSE WHO WANT TO LEARN: For those who want to learn about sickle cell disease.
- https://www.hematology.org/education/patients/anemia/sickle-cell-disease American Society of Hematology.
- https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheet_Supporting_Students_with_SCD.pdf Tips for Supporting Students with Sickle Cell Disease
- https://www.hopkinsmedicine.org/health/conditions-and-diseases/sickle-cell-disease St. Jude Hospital’s Guide Sickle Cell Disease
- Sickle Cell Anemia: https://www.mayoclinic.org/diseases-conditions/sickle-cell-anemia/symptoms-causes/syc-20355876
Helpful Articles
Medical Providers
FOR PROVIDERS For those who have students with sickle cell disease.
B In The Know
B In The Know