Meet Our Warrior: Sara

“My name is Sara Giannelli.  I am one out of 9 children and I have Sickle Beta Thalassemia.  While it isn’t Sickle Cell Anemia it is a variant of SS.  Living with Sickle Beta Thalassemia has had its ups and downs but I’ve never let it stop me from doing anything.  I know most peopleContinue reading “Meet Our Warrior: Sara”

It’s A Family Affair

I’ve asked each of our immediate family to share their own words about how Braden having sickle cell disease impacts them.  Here are thoughts from one of his big sisters…..   I love these pictures of me and my baby brother. These are hands down my favorites for many reasons. When I left for collegeContinue reading “It’s A Family Affair”

Summer Time & Sickle Cell Disease

Summer time is when the kids are out of school, their schedules are less structured, wake up times and bedtimes may be a little later but to the person with sickle cell disease there are additional things to keep in mind. Summer time brings hotter temperatures (especially in the South).  Those with sickle cell diseaseContinue reading “Summer Time & Sickle Cell Disease”