Meet Our Warrior: Sara

“My name is Sara Giannelli.  I am one out of 9 children and I have Sickle Beta Thalassemia.  While it isn’t Sickle Cell Anemia it is a variant of SS.  Living with Sickle Beta Thalassemia has had its ups and downs but I’ve never let it stop me from doing anything.  I know most peopleContinue reading “Meet Our Warrior: Sara”

Summer Time & Sickle Cell Disease

Summer time is when the kids are out of school, their schedules are less structured, wake up times and bedtimes may be a little later but to the person with sickle cell disease there are additional things to keep in mind. Summer time brings hotter temperatures (especially in the South).  Those with sickle cell diseaseContinue reading “Summer Time & Sickle Cell Disease”

Why Are You Smiling?

Not too long ago, my son and I participated in a fundraiser for our local children’s hospital.  We arrived for our portion of the event a little early and proceeded to check in to let the organizers know that we were there.  I recalled greeting several people with a smile on our way to theContinue reading “Why Are You Smiling?”