We are excited to announce our theme for 2020: Just B You! We will highlight our amazingly resilient sickle cell warriors and their dedicated caregivers throughout the year. Take a moment to watch our announcement!
We were excited to celebrate our 2nd Annual Birthday Bash & Blood Drive on Saturday, March 30th from 10 am until 4 pm at Caughman Road Park, 2800 Trotter Road. We were happy to once again partner with the Richland County Recreation Foundation and the American Red Cross and host this event that was FREE to the community!
Our theme for 2019 is “A Year of Nostalgia”. We will incorporate our theme into our event. We will have “Old School” games such as Hop Scotch, Red Light Green Light, Simon Says, Double Dutch and hand games. We will also have a Kids’ Corner, arts & craft and different organizations from the community. Entertainment will be provided by students from local schools. We will share information about our organization, sickle cell disease and share the importance of blood donation by hosting our blood drive. We will also be accepting toys to donate to the Cancer & Blood Disorder Center at Prisma Health Children’s Hospital-Midlands. Please join us!
Join us for this free community event!
FUN GAMES & ACTIVITIES
- Mini Kickball Tournaments
- Hop Scotch
- Red Light Green Light
- Jump Rope
- Simon Says
- Four Squares
- Hand Games
- And More!
- Satchel Ford Elementary Steel Drums Band
- Crayton Middle School Jazz Band
- Special Appearance by Iron Man
- Special Appearance by RCSD Team Mascot
- Special Appearance by local Representatives
THANK YOU TO OUR PARTNERS
THANK YOU TO OUR SPONSORS
My husband and I found out that our son has sickle cell disease when he was 3 months old. The newborn screening performed in our local hospital upon his birth identified that Braden has Sickle Cell Hemoglobin C disease. My husband has the trait and I have an abnormal Hemoglobin C. I (mom) had no idea of our son’s chances of having sickle cell because I had no idea of my or my husband’s genetic status. Needless to say, we had a very deep learning curve.
The majority of our education of this disease came from our son’s hematologist, pediatrician, our local Children’s hospital and its foundation and Google. I tried to learn as much as I could in order to appropriately advocate for my son. There were very stressful times throughout our journey, trying to understand discern if his symptoms were sickle cell related or just normal childhood ailments. A fever of 101 degrees F, was a required Emergency Department visit. For the first 5 to 6 years of his life, he was hospitalized multiple times per year for mainly infection issues. He is prone to pneumonia and has battled it numerous times. In 2015, he was diagnosed with acute chest syndrome and it nearly cost him his life. That was the most scariest time of our lives with Braden.
We are blessed to still be able to tell our story with Braden with us. We are still learning as much as we can and through this organization, hope to spread awareness about this disease, hope to be able to advocate for Braden as well as other children and adults who suffer from this disease and to listen to our warriors and their caregivers as they share their stories.
Good company in a journey makes the way seem shorter. — Izaak Walton