National Sickle Cell Awareness Month brings attention to this crippling illness, a genetic disease that many people around the world struggle with and must manage daily. Recognizing Sickle Cell Awareness Month helps to dismiss stereotypes and stigmas associated with persons who have sickle cell disease. Not only does this month shine light on sickle cell […]
September is National Sickle Cell Awareness Month — Live Healthy S.C.
On June 19, 2019, The B Strong Group will be celebrating World Sickle Cell Day & Sickle Cell Day in SC by hosting a fun, healthy, awareness Zumba event! We will join Jam With Tam and her Zumba family as we dance towards our healthy selves all for a worthy cause. We will help #ShineTheLightOnSickleCell by providing information on sickle cell disease for our guests. We will have local sickle cell warriors and parents of sickle cell warriors share a little of their story to give the inside perspective.
We, The B Strong Group, will continue to do our part in spreading awareness of sickle cell disease.
Space is limited but there may be a few tickets left, you can get your tickets at the following link: https://www.eventbrite.com/e/jam-for-sickle-cell-tickets-62241209132
The event will be held at the Richland County Adult Activity Center, 7494 Parkland Road, Columbia, SC in the Board Room from 6-7:30. Refreshments will be served. There will also be door prizes too! This event is free!
We were excited to celebrate our 2nd Annual Birthday Bash & Blood Drive on Saturday, March 30th from 10 am until 4 pm at Caughman Road Park, 2800 Trotter Road. We were happy to once again partner with the Richland County Recreation Foundation and the American Red Cross and host this event that was FREE to the community!
Our theme for 2019 is “A Year of Nostalgia”. We will incorporate our theme into our event. We will have “Old School” games such as Hop Scotch, Red Light Green Light, Simon Says, Double Dutch and hand games. We will also have a Kids’ Corner, arts & craft and different organizations from the community. Entertainment will be provided by students from local schools. We will share information about our organization, sickle cell disease and share the importance of blood donation by hosting our blood drive. We will also be accepting toys to donate to the Cancer & Blood Disorder Center at Prisma Health Children’s Hospital-Midlands. Please join us!
Join us for this free community event!
“My name is Sara Giannelli. I am one out of 9 children and I have Sickle Beta Thalassemia. While it isn’t Sickle Cell Anemia it is a variant of SS. Living with Sickle Beta Thalassemia has had its ups and downs but I’ve never let it stop me from doing anything. I know most people would be upset about having a disease that is always affecting their life but I don’t se it that way. I see it as a part of me that brings out the strength of God through me. It’s something that I battle and in these battles come testimonies. Testimonies that I can share to motivate others like me or others who face battles in life.
At the beginning of this year, I had a sickle cell crisis so bad that I needed to go to the ER. That same day, I was also supposed to work a junior tennis tournament 2 hours away in Columbia, SC. As I was laying in the ER, I considered calling and telling them I couldn’t work but there was this little voice that was telling me to push through and not back down. So I got up, packed my bags and left for Columbia. It was pretty cold in Columbia at that time but I felt that God was going to get me through the weekend. He did. I am now 20 years old and I’ve had several episodes. I am thankful for how God and my family have been with me through these years and many to come.” ~ Sara
